Thursday, June 5, 2014

Slow Down.....


It’s been a long, hard winter. Finally spring is here and on a fast track toward summer. The sun is shining, flowers are blooming. Nature has been busy. Life becomes busy.

As I sit with my morning coffee, I reflect on where I’ve been, and where I’m going. I’m happy that our family is moving forward little by little. But then I ask myself the question, am I really moving “forward”, or am I just moving? 

We lost another young man to Melanoma on Tuesday. Matt was the same age as my oldest son. It’s difficult for me to hear the stories of people fighting so hard against this disease. It hurts me when I hear someone else has died because of it.

Do I hide from the pain, cover my ears, close my eyes? Should I just avoid it? I could, I suppose. And those questions lead me to yet another. Why would I? For whose benefit?

 And that drops me smack dab ( where did that phrase come from?)  into the questions I’ve been skirting around for a while now. Why are we here, and what do we do with our time here on Earth?


As I move sideways, Matt's family has come to a screeching halt. While families are planning vacations, there is someone not far planning a funeral. We have one shot at this life.

I believe we are here to serve one another. To help. Make that phone call to the friend who is in an ongoing battle with cancer. Drop a note to the person whose life has taken an unexpected turn. The one who is going through a divorce. The person who just lost their job. The one who buried a loved one. They need you.

~Peace


Saturday, May 31, 2014

Unlikely Events...

There are many events in our lives that hold importance. Christmas, birthdays, Mother’s Day.....

May is Melanoma Awareness Month. An event. Our melanoma community has been busy blasting social media with stories of warriors, information on skin safety, new advancements in research and more. I see it fitting that I close out this month with Jillian.

You’ve heard the story. A story of a young girl, still in her teens loving life, and enjoying summer. One pesky mole on her back that just needed to be cut out. Melanoma? What’s that? That mole led up to several events in our family, and it ended Jillian’s life.


I’ve heard the comments, “ She’s too young. It just isn’t fair. Why”? I’m not questioning “why”. I’m not shaking my fist at God, asking Him how he could allow this could happen to such a vibrant young girl. I have questions about what the greater meaning of life is, however. And as we limp along this new road without Jillian, I’ll keep my eyes open looking for answers and opportunities to make it better.

In the meantime, events like Melanoma Awareness Month will be acknowledged. And if just one life is saved through sharing Jillian’s story, I’m okay with that. Well, sort of. J

Next week, in honor of our beloved Jillian, this billboard will be displayed in Grand Rapids, Michigan.


“Laying out and tanning beds, pretty much screwed me”- Jillian Hayes

~Peace

Saturday, May 3, 2014

Changing Colors...

So here we are again. May, Melanoma Awareness Month. I marvel at how life moves forward, pulling us along with the current even as we sputter and splash our way through. Some days we feel as if we are drowning as the tenacles of despair fight to pull us down into the dark abyss. Other days we are blessed with glimpses of brilliant light just beyond the banks. Like the reach of a child, bathed in sweet smiles, waiting with open arms.

Life has changed drastically for our family this past year. We are learning to live our life without Jillian. I’m learning to live with the images of her last year on earth. Those memories are becoming less horrific for me, and  are slowly being replaced with her true essence.

I’ve lived through the death of my dad, and an untimely divorce. I moved from my home, my place of solitude. I’m beginning a year of new memories.

And it’s good! I’m learning to view my life as a huge, evolving canvas. I’m not the artist, God is. But I get to choose the colors. I prefer the bright colors of spring, rather than the greys of winter. I know there will be dark hues on my pallet, but they’ll be mixed with pastels, giving the artwork more depth.

One thing hasn’t changed. My passion for awareness and education to Melanoma. The black of this disease is the frame to my canvas. But I’m stepping through, and appreciating my Makers hand, as he paints a marvelous masterpiece for me and my family.

I’ve been blessed to have met so many beautiful people throughout my journey. The next billboard is focusing on our Caregivers. The people behind the scenes. The other half to melanoma. The ones with broken hearts learning to live with their own cancer diagnosis, but in a different way.

The below billboard will be displayed in Grand Rapids Michigan. That’s FOUR  separate locations. How’s that for getting LOUD?

*May 5- June 1
I-I96 .3 mi E/O Chicago Drive SS/Facing E.

*June 2-June 29
US-131 .5 mi S/O West River Drive WS/Facing S
*Two Bonus Locations yest to be determined
May 5-June 29

My prayer is two-fold. Learn all you can about Melanoma, tanning beds and the sun. If you have just a tiny tickler of doubt, do your research. Educate yourselves. And then share what you've learned.

You may just avoid having to live with the Black on your own canvas.
~Peace and so much love...










Thursday, March 27, 2014

Taking Time....

After many prayers, much thought and consideration, I have decided to step back from social media for a while. My house has been sold, and we begin a new chapter in our lives.

 As we make the move to our new house in April, I need to place my focus on my family and the work involved with making our new house a home.

I will continue to work behind the scenes with the JillianHayes Foundation, and I will post our activities surrounding Melanoma Awareness.

The billboard for Caregivers has been paid for, thanks to all of your generous donations.THANK YOU for all of your help involved to make this happen! I will continue to accept photos through March 31. The billboard will be displayed sometime in May for Melanoma Awareness month. I'll post the dates and locations once I get that ironed out with the billboard company.


I’m not gone for long,  just taking some time needed to move through some important transitions. I can be reached via email at jemsforjilly@gmail.com

Thank you everyone for your continued love and support.

~Peace


Tuesday, March 11, 2014

I'm Tired. I Advocate. I Stand. Together....

I don’t know how this stuff happens, but it does. As I prepare for my day, God puts things in my head. My heart begins to race, my hands start to shake. I’m brought to a place that can’t be ignored. He won’t let it go.

Seriously, I’ve learned to listen.  

As I read though some of the posts on face book this morning, I discover that two more people have died from this disease. And this is just from people I’ve been in contact with though the melanoma community. One person dies in the US from melanoma every hour. Every hour! And lives are changed forever. Melanoma not only effects the person holding the cancer card, it effects those around them too. Their family, their friends. The caregivers. From that first heart stopping phone call forward, life switches gears abruptly for the rest of their lives. 

I am currently working on a billboard targeted toward young people that use tanning beds in preparation for spring break and prom. The nagging thought today was that I need to do a billboard that focuses on caregivers. People that didn’t know the dangers of tanning before their loved ones were diagnosed. People that know now, but wish they would have known before that dreaded call.

These billboards cost money. I have been funding these billboards with the jewelry I was making. With everything that has happened in the last year, I have taken a break from making anything. I’m currently in the process of finding a new home, and I’ll be moving in April. Something had to give. So…I am asking for help. If you think this is a good idea for a billboard, please donate. There is a “donate” button on this blog page, and every dollar helps. If you would like to show the world that melanoma touches everyone involved, please send your photo to jemsforjilly@gmail.com


 Melanoma Awareness

We Know Now. Do YOU?


Thank you melanoma warriors. Thank you caregivers. Thank you family and friends. We WILL make a difference.

Peace~

Friday, March 7, 2014

Standing United with the AAD.....

Last evening, several amazing people, along with myself, were invited to participate in a conference call with the American Academy of Dermatology to discuss their upcoming plans for May, Skin Cancer Awareness Month.

As some of you remember from last year, the Academy’s Spot Orange campaign evoked high emotion. Let me rephrase that. We were livid. Appalled that orange was promoted as the color for melanoma cancer, and not the traditional melanoma cancer color, black. We embrace black.


The Academy responded to our concerns last night with “flying colors”.

“We are proud to say that we will be dedicating Melanoma Monday and the first week of May to melanoma awareness. We will support the melanoma community’s efforts to raise awareness with the color black by looking for opportunities to retweet and “like” your social media posts. Our call to action will be promoting a potentially life-changing behavior of early detection- how to SPOT Skin Cancer. We look forward to being a united front in educating the public about melanoma and other skin cancers”.

We all have the same goal. We all want to save lives, and we all want a cure for this devastating disease. Together, we really DO make a difference.

I'm so blessed to be a part of this melanoma community. A place of passion, dedication, support and love. 



~Peace

Wednesday, February 5, 2014

Siblings: The Forgotten Mourner.....

I love winter. I love the way the snow insulates and buffers my world. Today as I’m thinking about winter and the icy roads, the sidewalks filled with snow, I’m reminded of an old friend. I met Michael as I was working in my yard many years ago. I had just purchased my home and I was anxious to put my stamp on it. One summer day, while I was digging and clearing dirt for a pond, I stood up to admire my mess. I noticed a young man and his dog passing by. I must have smiled at him because he turned his wheelchair around and drove up my driveway. We started talking, his beautiful Golden being the ice breaker. His dog was still a pup, full of boundless energy. They didn’t stay long, they needed to finish their walk.

The next day, Michael and his dog were back. We talked about my pond and I told him how I was struggling to get it level. He lit right up, eager to help me.  He suggested places I could arrange the rocks around the outside of the pond. He helped me build up the waterfall. I loved having him around giving me his input and direction. We became fast friends, soon learning about each other’s lives. . He shared how he became paralyzed. At the age of 14, he dove into a neighbors pool and broke his neck.  He was around 30 or so when I met him.

One day it was particularly hot as we worked together. I suggested taking a break so we could get some water for the dog, and a glass of ice water for the two of us. I placed the dog dish on the ground, and handed him his water. He just looked at me. It never dawned on me that he couldn’t move his arms and grab the water for himself. I gently placed the glass to his lips, and waited for his direction. He tilted his head back, and I followed, waiting for him to swallow. Together, along with his beloved pup, we shared our glass of ice water. Michael ended up moving to Florida not long after that summer. He wanted to be in an environment where there wasn’t any snow. A place where he could move around easier. We lost contact after he moved, and I haven’t been able to locate him. I miss him.

My thoughts of winter, Michael and my children all intertwine. I’ve been learning a lot about the types of grieving, the processes and stages. I know what it’s like as a mother to lose her daughter. I needed to learn more about the impact on my children. What is it like to lose a sibling?

The Forgotten Mourner

The loss of a sibling is a devastating life event. When a sibling dies, the world changes in a heartbeat. Oftentimes when such a loss occurs, others fail to recognize that the surviving sibling faces emotional battles on many fronts while working through the loss. Largely ignored, surviving siblings are often referred to as the “forgotten mourners.”

Siblings who play a major part in each other's lives are essential to each other. Adult siblings eventually expect the loss of aging parents, the only other people who have been an integral part of their lives since birth, but they do not expect to lose their siblings early; as a result, when a sibling dies, the surviving sibling may experience a longer period of shock and disbelief.

The Loss of History

Each family has its own special history and the shared bonds that are a part of that history. When a sibling dies, the bonds are shattered, and the history forever has a void that cannot be filled. As they grow, children develop certain characteristics and talents. Brothers and sisters tend to complement each other by developing a balance of interests in different areas. However, surviving siblings will need to redefine their roles in the absence of this relationship.

The Loss of Future

When a sibling dies, all future special occasions will be forever changed. There will be no more shared birthday celebrations, anniversaries, or holidays. There will be no telephone calls telling of the birth of a new nephew or niece. The sharing of life’s unique and special events will never again take place.


Understanding from Others

Society often encourages bereaved individuals to feel guilty for grieving too long. This failure to receive validation of their grief can cause siblings to hide their feelings, causing a type of depression with which they may struggle for many years.
If the surviving sibling is married, stress may also be introduced into the spousal relationship. Individuals grieve differently, and the spouse may be bewildered and even unsympathetic that this loss is causing so much sorrow in their own family. This situation may provoke comments such as, “Why are you so upset? You haven’t been close to your family for years.” While this may sound reasonable, the emotions of grief and mourning are seldom reasonable—or even rational. Spouses may need to be told how they can be supportive. One woman simply asked her husband for a hug whenever she felt especially sad about the death of her sister.

When your sibling dies, you lose a part of your past, your present, and your future. Because of this tremendous loss, it is important that everyone work together to ease the path toward healing.

Grief is real. Grief has physical qualities. Don’t assume the griever is able to take that drink of ice water just because the oozing wound isn’t visible. It’s there.

 Jillian’s sister, Jenni, posted this on her face book yesterday. It says it all:


"the reality is you will grieve forever. you will not 'get over' the loss of a loved one; you will learn to live with it. you will heal and you will rebuild yourself around the loss you have suffered. you will be whole again but you will never be the same again. nor should you be the same nor should you want to



I love you, kids. And I’m real proud of you all.

~ Peace